Dr. Appointment Postponed

We were on our way to Tucson, when Dr. Ong's office called and said he would have to postpone Joe's appointment.  Dr. Ong was called into emergency surgery.  Although a little disappointed, we certainly understand.  His appointment has been rescheduled for January 3rd.  In the meantime, we are enjoying our time off with friends and family.  We've had visitors from High School, College, Family from California and friends from England.  We had a wonderful Christmas, we moved Amanda to her new Condo and are having our granddaughter's baptism this weekend.  We are definitely keeping busy, but having lots of fun.  Joe is hanging in there.  He is having a lot of fatigue and bowel issues.  Hence, why we're looking forward to talking to Dr. Ong to see if anything can be done and find out how to get those tests approved.  I'll update the blog after our appointment.  In the meantime, we wish you all a Very Happy New Year and a HEALTHY and HAPPY New Year.  We're certainly praying for a good year :)  XOXO  Sherrie & Joe

Merry Christmas!

We just want to wish each of you a wonderful Christmas and holiday season.  We feel so blessed to have each of you in our lives.  The prayers are definitely working.  It's amazing where we started this journey, all we've been through and how well we are doing.  We are not letting cancer dictate our lives.  We are living our lives and cancer is simply the inconvenient part - although a major inconvenience!  Our holidays will be filled with family and friends and food and fun.  We do have to throw in a few Dr. visits too.  We'll be seeing Dr. Ong on December 27th to find out if something can be done to help Joe's bowels and find out when/if we'll get those tests approved by the insurance.  I'm sure they will get approved eventually, but the waiting and wondering is painful.  So we're trying not to think about it and just enjoy each and every moment.  On another bright note, we received some wonderful messages from the families we all supported from the golf tournament.  Without going into too much detail, we just wanted to let you know that their appreciation for all you guys did is an understatement.  There were an abundance of thanks and gratitude and tears of joy.  What a great gift for all of us.  Joe and I and our family thank you from the bottom of our hearts to allow us to share your gift with others.  Nothing gives us a greater feeling than "paying it forward". 

All our love and gratitude,

                  The Kahlers

One Year Anniversary

It was a year ago today that Joe woke up from surgery to learn they found numerous tumors in his abdomen.  He was extremely nervous to get his Petscan test results back today, of all days.  Two tumors showed up (same as his Petscan several months ago),  but the good news is they have not grown and no new ones showed up either.  Dr. S was encouraged, as were we.  He did say that  the tests are inconclusive and an MRI would hopefully show more of what's going on.  Unfortunately insurance has denied the MRI test, so the Dr's will fight for us to get that test approved.  He also mentioned that he may eventually need a laparoscopic look to really find out if the cancer that was left inside is growing or spreading.  His type of cancer is difficult to detect in these tests.  Joe has been having a lot of pain in his joints and his bowels are an absolute mess.  Dr. S said the joint pain could be a side effect from the chemo since Joe still has neuropathy from the chemo as well.  He stated that Joe's body is in no shape to handle chemo at this time, so we have to keep those prayers coming to keep the cancer at bay.  He also increased his meds again to try and help the bowel issues.  Joe's other issue is extreme fatigue which could be an effect of his bowel problems.  We will be heading to Tucson towards the end of the month to meet with Dr. Ong and see if there is anything more that can be done to help Joe's side effects and get his opinion on Joe's next step.  In the meantime, Joe will continue to receive fluids and Avastin to keep him hydrated and keep the cancer from spreading.  We are staying optimistic, we are grateful for Joe's strength to keep fighting and so thankful for our family and friends for supporting us during the last year.  It's been such a struggle and we would have never made it this far without your prayers and support.  As Joe says, with your support "No One Fights Alone", 
XOXO The Kahler's

Best Day Of The Year!

The Kahler Klassic Golf Tournament was unbelievable.  Joe was so excited, but it didn't compare to the actual event.  The day was full of fun, tears, laughter, gratefulness, hugs, beautiful weather, good food, prizes and most important the best support group we could have ever imagined.  Joe woke up this morning and said "That was the best day I've had in a year!".  Talk about a boost.  There are so many people to thank for all of this between the volunteers, contributors, supporters, attendees and sponsors.  I do want to thank the guy that made this happen.  Ray Rawlins called us and said he wanted to do this for Joe.  We resisted, he insisted and hence, it happened.  We just can't thank him enough.  From there, with the help of some amazing volunteers and the generosity of so many, we had a huge, successful day.  We had 160 people (and one dog :)) join us for the day. We net $6000 for families that are fighting rare cancers.  One of the recipients, Erin was actually there in person.  We were able to surprise her and her husband Charlie, at the event.  It was so great.  We just wanted Erin and some other recipients to know that "No One Fights Alone".  We are all there for each other and each and every one of you have been there for us.  There is no greater feeling in the world.  We Love you all so very much!  The Kahlers

p.s.  If anyone did not get their picture with Joe or would like other pictures from the event, please email me at sherriekahler@hotmail.com so I can get it to you.

Joe and Sherrie

Daddy's Girls - Amanda, Candace and Shelli

Joe and Ray Rawlins

The Kahler Klassic Golfers

Touring the Course with Dustin (the dog)!

Joe gets a standing ovation - brought us to tears

Kahler's, McDaniels and Erin and Charlie

Amanda announcing the raffle

Amanda and Candace can't find hole 14!

Joe in total "awe" at the event

1st Place Team!!

Last Place team gets fishing poles (time to change sports!)

Doug and Candace

Edison and his Aunties Shelli and Amanda

Sharon, Becky and girls at check in

2nd Place team

Quinn looking to the heavens and thanking God for a wonderful day!

Golf tournament update

Thank You All So Much!!!  The golf tournament is full.  I will be sending the team captain an acknowledgement confirming your participation.  If you don't get an email, please email Ray Rawlins at mvptrophies@cox.net or myself at sherriekahler@hotmail.com and we will put you on the waiting list.  There is still plenty of room for lunch, so if you can't play, we would love to have you for lunch and the raffle.  You can come any time for the lunch.  Also, we are still looking for raffle/silent auction items.  Any thing would be so appreciated.  The families we are supporting will be so thrilled (as are we!!).  You guys are amazing and we can't wait to see each and every one of you.

XOXO
Sherrie and Joe

NO ONE FIGHTS ALONE!!!!! 

A tough, but rewarding weekend

Joe, his brother Norm and I went to their high school in Lancaster, CA on Friday and to Whittier College for homecoming on Saturday.  Joe actually got out on the golf course with his high school friends, had lunch with some more friends and then crashed.  After sleeping and dealing with bowel issues, Joe rallied and made it to the game where he and his brother (along with others) were honored as the Spirit of the Year for their Senior year.  After that we attended a nice reception where he got to visit with so many people from his past.  Thank you Mark and Karen for taking such good care of us!!



High School friends - Joe Slavin, Mark Bozigian, Joe and Don Wible





Norm (Joe's brother), Sherrie and Joe




Joe and Mrs. Binando

 Saturday morning we headed to Whittier where we each attended our Fraternity/Sorority brunches.  There was an outdoor reception after the brunches.  Unfortunately, Joe became very sick and had to leave shortly after arriving at the event.  He did get to visit with several folks, but his body just wasn't cooperating.  I'm sorry for those we did not get to see, but hopefully we can come back next year and stay for the event. 

This weekend was tough on Joe physically, but such a boost for him mentally.  It was also a huge boost for me as well.  Joe and I were able to visit with so many of you, as well as meet some of you for the first time.  I have to tell you that we have been talking about all of you the entire day.  You just have no idea how special all of you are to us and how much we treasure the kindness and words of encouragement we received.  Thank you Anna and Doug for taking care of us in Whittier!

Gina And Joe - Kept their promise to toast each other a year ago



Norm, Joe, Don White and Dave Mires



Even though we are both tired and Joe has been in bed all day since arriving home, the mental boost is just overwhelming.  We will always treasure this weekend and thank you all from the bottom of our hearts.

XOXO
Sherrie

No One Fights Alone

That's our theme for the Joe Kahler Klassic Golf Tournament.  We have been so blessed to have all of you support us during this ordeal, that we wanted to capture a theme depicting our fight.  The golf tournament is really coming together, thanks to all of you.  If you haven't already done so and would like to golf, please email Ray Rawlins right away.  The spots are filling up fast.  If you don't golf and would like to come to lunch, please let us know that as well.  All the information is in the flyer posted on the last blog update.  Joe and I will not be golfing, but will be around the entire time visiting with our support system.  In addition, we will be having a silent auction and a raffle.  If you have anything you would like to donate, all donations are greatly appreciated.  Anything from golf products, gift certificates, books, home goods, sporting goods, cooking....  anything.  Just contact me at sherriekahler@hotmail.com and I'll arrange a pick up.

To update all of you on Joe's progress, his bowels are still not cooperating.  He's struggles daily, but doesn't let it get him down.  He had a doctor appt today and Dr. S was so impressed with Joe's attitude and fight to get through this.  He said his blood counts were slowly improving, but he was not going to try any chemo in the near future.  He still has a way to go to handle those treatments.  Joe does receive IV's of fluids weekly and an IV called Avastin.  Avastin is not a chemo, but has been administered with each chemo treatment in the past.  It prevents the cancer from spreading by restricting access to the blood vessels (which is the mode of transportation for the cancer).  He's always received Avastin with chemo, so now they are just administering it alone since it doesn't have the side effects of chemo.  It won't stop the cancer from growing, but hopefully it is stopping the cancer from spreading. 

On a positive note, Joe and I are flying to California on Thursday, along with his brother Norm from MN.  Joe and his brother are being honored at their high school.  They both received the "Spirit of the Year award" their Senior Year.  I'd say, he's still our Spirit of the Year!!.  On Saturday, we travel an hour to our Whittier College homecoming to spend the day with our college friends.  I haven't seen Joe this excited about anything in a long time.  Watch for pictures in the next blog.

Thanks again for all your prayers, love and support.  We really feel like things are improving because of the support we get from all of you.  We know we aren't fighting this alone!! 

Love to all,
Sherrie and Joe

Golf Tournament for Joe

I just want to give you all an update on Joe this week.  He is better than he was after chemo, but still struggling with issues.  Because his bowels are still not cooperating, he fights dehydration constantly.  Hopefully his bowels will wake up and start working properly soon.  Prayers for working bowels appreciated :)

On a 2nd note, I'm attaching a flyer for a golf tournament in Joe's honor.  Friends have been asking over and over what they can do to help and they have taken it upon themselves to do just that.  We are very appreciative as we have met folks in financial hardship during the fight with cancer. The proceeds will help support cancer patients in need.  Thank you Ray Rawlins for setting this up.  We hope those who are available can come out and support the cause or just come and visit with Joe and our family.  We are all so excited to see everyone and just have fun with family and friends.  For those who can't make it, I will be posting pictures, so no worries. 

Love and thanks to all,
Sherrie

Joe Kahler Klassic 

Golf Tournament

 

When:        Saturday, November 17, 2012

                                                                                                     

Time:          7:45 a.m. Shot Gun Start

Arrive by:  7:15 a.m. sign in/warm up

Where:       KoKopelli Golf Club

                   1800 W. Guadalupe Rd. Gilbert

                  

Format:      Four-Person Scramble

Entry Fee:  $80 per player / $300 per foursome

Includes lunch, green fee & cart

Raffle tickets will be available for purchase!

Lunch:        If you don’t golf, but would like to come to support the event, you can join us for lunch and the raffle for $15.  We would love your support!

Deadline:   Entry Deadline is Friday, November 5, 2012

                  

         Questions? Contact Ray Rawlins - 602-206-5608 or mvptrophies@cox.net            

---------------------------Tear here and return with payment ------------------------------------

Company: _____________________________ Phone: (_____)__________________

Address: ______________________ City/State: __________________ Zip: ________

Name: ________________________         email___________________           

Name: ________________________         email___________________          

Name: ________________________         email___________________

Name: ________________________         email___________________

         

___     I will sponsor a green @ $150.00*

          *you may provide electronic artwork if you would like your logo listed on the course*

___     I cannot play but please accept my donation to Joe Kahler

___     I cannot play would like to attend the luncheon

Make/Mail Checks Payable to:

Joe Kahler
5683 W. Dublin Lane
Chandler, AZ  85226

All proceeds from the tournament go directly to Joe Kahler* who has established an account to assist those individuals who are in financial need due to their cancer diagnosis.

Thank You For Your Support

*Joe Kahler is not a 501(c)(3) organization

Things are getting better

Joe was so sick that he had IV's daily last week.  The Dr. also changed up (added) doses of medications to help with the situation.  It all worked well and Joe had a fairly good weekend.  He definitely feels better than he did, but is still having issues.  He has spells of dizziness and nausea and has constant numbness in his hands and feet.  His bowels are still out of control, but less often than they were.  Sometimes Joe is hungry and can eat just about anything and then he'll go for hours just feeling sick and can't eat.  We can't figure out if something specific triggers the issues or if it's simply the effects of the last chemo treatment.  Regardless, he is very happy that he has periods of "normalcy" and isn't constantly sick.  In fact, he was so excited to eat and feel OK, that we drove up to Flagstaff to see Shelli and then to Prescott to see my parents.  It was really fun to get Joe out of the house for a couple of days. 

Joe will have more tests this week to monitor his hydration, blood count, vitamin levels and tumor count (blood test that is a small indicator of cancer growing).  He'll meet with the Dr. on Tuesday for the results and any adjustments that may need to be made.  Since he can't have chemo, he'll just be in a maintenance mode for awhile.  Once the bowels start working (could be 6 mos - 1 year), then they will talk about chemo again.  Both doctors still want the MRI and other tests done in December to try and see what is going on and if the cancer is spreading.  We're hoping and praying for a Very Merry Christmas!

XOXO
Sherrie

He's home

Joe is home from the hospital, but not doing so great.  He has stopped vomiting and is not as dizzy as he was, but is still very sick.  He is having a difficult time staying hydrated since his bowels are just going crazy.  I have to really stay on top of him to constantly drink water and try and eat little bits at a time.  He is really giving it every thing he can, but I know it's just wearing him down.  He's up all night and can't rest much in the day because of the issues.  He will have several tests done tomorrow and then back to the doctor on Tuesday to hopefully find something that can give him relief.  Thank you all for your love, support and prayers.  Joe is really appreciative as well.  He continues to talk about our wonderful family and friends.

Love,
Sherrie

p.s.  The AZ Cardinals win did bring a lot of JOY to Joe today.  Go Cardinals!!

Another Tough Week

Joe had a really tough week and is currently in the hospital trying to recover.  Joe was still vomiting on Sunday (almost 2 weeks after chemo).  We went to the oncologist on Tuesday and Joe's test results were much better.  He gained a couple pounds, his white blood count was normal, his tumor count was up slightly (not the good part), his hydration level was OK.  With that, Dr. S. said he and Dr. Ong thought it was best to try chemo again.  We pushed back, but Dr. S. explained how "nasty" this cancer is.  He said it was "embedded" in the scar tissue and they fear it would embed itself into critical organs.  We accepted the chemo challenge.  Dr. S reduced the treatment to a level that it would still be effective, but hopefully a level that Joe's body could handle.  Unfortunately, we all learned that there is no level that his body can handle right now.  Joe started getting sick the minute he got home.  He was sick through the night non-stop.  He broke so many blood vessels in his face from vomiting and became so dizzy, he couldn't walk.  Dr. S ordered him to the hospital where they are keeping him hydrated and on several meds to control all that is happening.  He came in this evening and told us that Joe is done with chemo for awhile.  We'll have to take our chances that the cancer won't spread fast and that his bowels and body will heal enough to try chemo at a later time.  This was just not worth the risk.  No one (not Dr. S or Dr. Ong) expected his body to react this way to a reduced treatment.  He handled 10 times the strength and length before, with minor issues compared to this.  I hope to have Joe home tomorrow resting, eating, drinking and laughing again.  Prayers gladly accepted.  XOXO to all.  Sherrie

Chemo Halted

Joe had a very difficult week since he had the chemo treatment.  In addition to the usual, nasty side effects, his body really struggled.  He lost 7 lbs in 6 days, had bouts of partial blindness and spent most of his waking time in the bathroom.  The doctor sent him to be tested on Monday and we went back to the doctor today for results.  He said he was dehydrated (even though he was receiving IV's), lacked electrolytes and his B12 was dangerously low, in addition to bowels not working, neuropothy and naseau.  He spent 3 hours today getting boosted up, instead of torn down with chemo.  Dr. S. said his bowels just can't handle even the reduced chemo dosage yet, so he cancelled the treatment for now.  This was music to Joe's ears.  He just couldn't take much more.  He will work on putting some weight back on this week and be tested again on Monday and back to meet Dr. S. on Tuesday.  I'll update the blog as soon as we get Joe's test results back next week.  Keep those prayers coming.  We love and thank you all so very much!  Sherrie

Back to Chemo

Joe started his new round of chemo today.  As the doctor's promised, he went to the cancer center for several hours, but did not have to wear the chemo pack home.  Unfortunately, the side effects kicked in immediately.  His nausea, neuropathy, fatigue, and other side effects began almost immediately.  The good news is the new meds Dr. Ong put him on before chemo (and the chocolate chip cookies that were baked for him by friends) helped him gain some weight right before treatment.  He's not feeling well tonight, but we're hoping things start improving as soon as tomorrow.  My work team gave us a wonderful gift card to one of Joe's favorite stomping grounds, so that will motivate him to get well quickly and start enjoying those wings and beer again!!  Thanks to everyone for thinking of us today.  The prayers and support continue to strengthen us each day.  Love to all,  Sherrie

Labor Day 2012

We went to Lake Powell for a few days and had a great time.  Joe went on the water one of the days and did good.  Luckily it was such a beautiful day and we found a beach close to the marina.   Joe said "it was the perfect day".  We had family and friends and just had such a great time.  It was hard to leave.  When we returned, we had to go to Tucson for an appointment with Dr. Ong.  Because Joe's bowels are not cooperating, he is adding a 3rd prescription to the mix.  He also stated the meds may not work either and it may be many more months before they catch on.  He read the test results regarding the tumors and like Dr. S., could not confirm what the tumors were - all cancer or part cancer and scar tissue.  Regardless, he agreed that Joe needs to start chemo right away.  With that, Joe begins his next series of treatments on Tuesday.  He will have 3 months of treatment and then begin a new series of tests.  Dr. Ong told us that UMC now has a new MRI and technician that can detect tumors much better than ever before.  It will be ready for Joe when he completes this round of chemo.  Without that test, they would have to perform a laproscopic look, which would mean another surgery, more scar tissue...  Hopefully the new MRI will give them the information they need to avoid the laproscopic look.  Thanks as always for your continued support.  I'll update more after Joe starts chemo.  Keep those prayers coming that he will be able to tolerate the chemo and the chemo can keep the cancer at bay.  Love, Sherrie
p.s.  Our youngest daughter Shelli is adjusting well to college (much better than I am adjusting to life with her away).  I know it will get better :)

 

Dr. Visit 8/30/12

Joe had his Dr. appointment yesterday and got the test results back.  The Petscan showed 2 large tumors, but the Dr. is not convinced they are 100% cancerous tumors.  They are located near scar tissue from the surgery, so it may be a combination of scar tissue and cancer.  Other tests showed that his hydration level has significantly increased since the ileostomy reversal, which is why Joe is feeling somewhat better.  His "tumor count" is up slightly from where it was right after the hot chemo surgery, but is down from where he started.  His B12 level is "dangerously low", so they started a series of injections right in the office.  He has to continue these injections weekly for at least 3 months.  So the bottom line is, the cancer is there, it's difficult to tell how fast or slow it is growing and Dr. S. wants Joe to start chemo right away.  The problem is Joe's bowels are still not functioning properly (no weight gain since he's been home) and chemo can make that situation even worse.  So Dr. S. has recommended Joe start chemo next week, but with reduced dosages.  He will have to go in every week and have chemo for 7 straight hours.  The good news is he will not have to wear the chemo pack for the additional 48 hours.  Dr. S. is hoping this will be strong enough to keep the cancer at bay, but not too strong that his body could not handle it with his existing bowel issues.  He feels (as does Dr. Ong) that the hot chemo really did a good job, although it can't get it all.  They keep reminding us that Joe's cancer has to be attacked from the inside out (chemo) and the outside in (the knife and hot chemo).  Time for inside out, since he's really had enough of outside in for now!

We are headed to Lake Powell for our annual trip.  We have no idea how this will go, but we have never missed this vacation in 20 years and Joe insisted that we go.  The whole family and several friends are joining us.  Joe said he may have to stay in the hotel during the day, but he doesn't care.  He doesn't want us to miss out.  Always thinking of others!  We get back on Monday and head to Tucson to meet with Dr. Ong on Tuesday to see if anything can be done to get these bowels working.

More to follow after our Tucson visit.

XOXO to all!
Sherrie

Shelli's off to college

She's all moved in and it was worse than I ever imagined.  The tears were abundant.  Like we predicted, Joe held us all together and the rest of us cried and cried.  Shelli is being very patient and letting me call her every day.  I'll cut back.....eventually.  She has a lot of friends and is already adjusting well.

Joe did good mentally, but not as good physically.  We're not sure if it was the altitude or the 2+ hour drive, but it hit him hard.  In his usual Joe fashion, he never complained and wanted to be around the action at all times.  We met up with his high school friend and family and their friends and our whole family was there as well.  It's great to see him smile :)

He has 2 more tests tomorrow and then we get the results on Thursday.  I'll be posting as soon as we learn something.  We have no idea how things will go.  He hasn't gained any more weight, but the Dr. hinted he may need to start chemo soon.  We'll just have to wait and see.

Love and thanks to all,
Sherrie

Tea Bags

A co-worker of mine shared a quote from his Pastor that reminds me of  Joe's strength:

"People are like tea bags.  You never know what they are made of until you put them in hot water." 

Joe is having a somewhat difficult time right now, and yet remains so strong.  His bowels are just not functioning properly and hence, no weight gain.  He is fatigued, experiences stomach cramping, nausea and other unpleasantries, yet he presses on.  He fights this every day and does everything he can to help around the house, support others and bring as much normalcy to our lives as he can.  I am truly amazed.

He did venture out last weekend to meet up with a lot of friends he has not seen in awhile.  Thanks to Dave who drove him and watched over him (like I would have or maybe even closer :)).  Although, it wasn't the same trip they had experienced in the last 30 years, it brought lots of laughs and memories for Joe.  He was so excited to see everyone.  Thanks boys for showing him a good time!

We will also be taking Shelli (our baby) to college on Thursday.  Joe and I and the girls will all be there to move Shelli into her dorm at NAU.  Joe will be strong and that's when I will completely fall apart! 

As soon as we return, Joe will finish up his tests.  We see Dr. S (oncologist) on August 30th and Dr. Ong on Sept 4th.  We will know the next phase after those Dr. visits.

Thanks for all the good wishes and follow up to see how we are doing.  You are a truly amazing support group that we will forever be grateful for.

XOXO
Sherrie
 

Dr. S. Visit 8/6/12

Today was Joe's visit with the Oncologist in Chandler.  He discussed lots of things, but I'll try and summarize the highlights.  First, although Joe has gained some weight back, he is still not strong enough for chemo.  He definitely wants another 10 lbs on Joe, plus the hole in his stomach from the last surgery needs to be healed much more before they can start chemo.  He expects it will take at least another month or so before these events will happen.  Until then, he's going to start a series of tests to try and determine how much cancer is left and how large the tumors are in Joe's abdomen region.  This is not that easy.  The tumors have to be sitting just right and so large before they can be detected.  In addition, there are certain tests that they can't do because the prep can really mess up Joe's gastrointestinal system.  Joe will have the tests completed within the month and from there, they will start the chemo.  The type of chemo will be determined from the test results.  Dr. S does not think he will be on the same chemo treatments he was on before the surgeries.  He thinks it will be something far less traumatic.  He gave us hope that all the surgeries and hot chemo really made a lot of progress against this terrible disease and eventually Joe will be on a maintenance program.  He also reiterated how good Joe looks.  He was amazed (as are all of us) with Joe's strength.  He commented several times on how well Joe looks and how much progress he made in between visits.  Please keep those prayers coming.  They continue to work miracles!  All our love and thanks,  Sherrie  

Dr. Ong visit July 31st

Joe had an appointment with Dr. Ong today.  It went fairly well. Joe gained 4 lbs, which is awesome!!  Dr. Ong said he is healing well, although a little behind most patients after a reversal.  This is to be expected due to all that Joe has been through.  His wound is healing, his bowels are crazy, he is still fatigued and all of these things will take awhile to fully heal.  Until then, limited activity, additional medications and the worst news for Joe - - start eating vegetables!  Joe also asked if he could golf and Dr. Ong said "he heard he couldn't golf before the surgery, so the answer is NO."  Lots of laughs!!

The downside of the appointment was Dr. Ong wants Joe to head back to Dr. S (his oncologist) and start his chemo plan.  He doesn't want to wait any longer.  Joe was hoping for a longer reprieve before chemo, but it is what it is.  He has his head around it now and will push forward.  He said God and his support group will get him through this next phase.

Hugs, thanks and kisses to all!
Sherrie

  

He's Home!!!

We are home and Joe is doing really well.  Dr. Ong was so excited when he came into Joe's room and saw him dressed and ready to go.  He even left the room, went out and got a couple other doctors and brought them in to see this amazing patient.  No one can believe how much Joe has been through in the last 7 months (chemo and 4 surgeries) and looks and acts this good.  With that, he was released.  Dr. Ong reminded us that if anything happens, we are only to go to UMC.  No other hospital.  With those instructions, we stayed in Tucson an extra night just to make sure we would not have to go back.  Our wonderful hosts, Wayne and Rebecca made everything perfect for us.  They even brought in cool weather and the world's largest slushy (see picture).  It was enough to feed 50 people and Joe savored every bite (although he couldn't come close to finishing it).  Once home, Joe has been doing well.  He has a large hole in his stomach that we have to clean and pack with fresh dressing daily.  He is still extremely fatigued and has fairly severe bowel issues.  Dr. Ong said this was to be expected, but he will continue to improve.  He is eating regular food and has gained a couple pounds as well.  Dr. Ong will continue to monitor his progress closely and when he thinks it's safe, will send him back to his oncologist, Dr. S.  Dr. S will then start talking to us about chemo options.  Until then, keep those prayers coming.  The power of prayer is a miraculous thing and has obviously been a huge influence on the Kahler family.  With all our love and thanks,  The Kahler's.

Getting Stronger Every Day

So happy to report that Joe is doing better each day.  They moved him from one popsicle to unlimited popsicles (he ate a whole box) to real food.  They are monitoring him closely in hopes that he can go home soon.  Everything in and out gets measured.  When he hits the magic number with no problems, he'll be released.  When he first started eating food, he had numerous problems, but is now doing better.  The girls all came to Tucson this weekend to visit Dad.  We were all shocked when we walked in and Joe was dressed with shoes on.  We thought for a minute he was planning an escape.  No, he was just feeling so much better that he wanted to look as normal as he could.  We all went for a walk outside (including Mr. IV) and Joe just soaked up the sun.  It was a beautiful day in Tucson!  Praise God, our Joe is coming back to us.  He has a long road ahead, but considering where he has been, this is such a blessing for all of us.  Thank you so much for the prayers.  We know they are working and truly feel them all day, every day.  Love to you all, The Kahler’s

Pictures:          Papa Joe and Quinn (5 months)
                       Shelli, Amanda, Joe, Candace, Quinn and Mr. IV

                         

It's the little things.....

Dr. Ong snuck Joe a popsicle!!   I've never seen Joe so happy.  He only got one, but Joe split it in 2 and ate half for lunch and the other half for dinner.  What a treat!!! 

4th Day Update

Joe got off to a rough recovery start, but is slowly starting to heal.  His epidural block did not “hit the mark” and as a result, did not numb the surgical area.  Instead, his left side was completely numb.  He could not stand or walk or anything.  They increased his pain meds since the block didn’t work, which only made him sick to his stomach.  In addition to that, his body was not processing all the IV’s and he was extremely swollen (gained 12 lbs of fluids in one day).  The epidural is not a shot like they give a woman in labor, but a tiny long wire tube inserted into the back.  They could not just remove it, so they slowly decreased the input and were able to remove it yesterday.  Joe also had them remove the pain med pump.  He’s one tough guy!  Since then, things are starting to improve.  He’s taking walks down the hall now, with assistance.  Unfortunately, his bowels have not woken up yet and they are keeping him NPO (no food, drink or even ice chips).  He’s only allowed to have a sponge swab in his mouth.  He’s on IV’s for nutrition and hydration, but all he thinks about is water and popsicles.  The nurses have boxes of Cherry Popsicles in the fridge for Joe just waiting for the word.  Dr. Ong said hopefully tomorrow.  He just isn’t going to take any chances and Joe and I are definitely OK with that. 

More to follow…  Thanks for everything.  Our support group is amazing!!

XOXO

Sherrie

Surgery went well

So happy to report that Joe's surgery went well today.  Dr. Ong told us that he had prepared us for the worst because these surgeries can be so tricky, and often come with lots of complications.  He was worried about Joe's strength as well.  But, in typical Joe fashion, he was amazing!  Dr. Ong did not have to open him as far as he had originally thought.  He was able to sew the bowel back together and put it back in it's original place.  The hope is by doing this, the food will have farther to travel in Joe's system and a Joe will have a better chance of the nutrients being absorbed.  If this all works, he'll be able to gain weight and strength and can go back on chemo to continue the battle against his cancer.  Joe does not have an NG tube either.  That made him very happy when he woke up.  The other connections are nothing, compared to his last 3 surgeries.  He bypassed ICU and had a huge smile on his face when they wheeled him to a regular room.  A wonderful feeling considering he was bracing himself for something much worse.

Joe is not out of the woods yet.  He can't have food or drink (except through an IV) for several days.  After that, he will be on clear sips, clears and then a soft diet.  They have to make sure that a bowel does not form until the stitches on his small intestine are healed.  Without that, he risks having the stitches come apart and going septic again.  That would be devastating. 

Dr. Ong told us because he did not open him as much as originally expected, he could not look around to see how the cancer was doing.  He could only see the part of the small intestine he was sewing back.  He did say it was clear of cancer.  We'll take it - - - small victories!!

Joe is resting comfortably on pain meds and an epidural block right now.  They are going to get him up tomorrow.  They will start by sitting him in a chair and knowing Joe, he'll be walking down the hall before you know it.  Stay tuned....

As always and as Joe expressed to you on the last post, we can't thank you enough for the never ending support and prayers.   You can definitely tell, it's working. 

All our Love from the happy Kahler's! 
Sherrie

Posting From Joe

Hello Support Team!

I was telling Sherrie how amazing it is that you all still show me so much support and love through this challenge I am going through. You are all so special and the fact that you have hung with me throughout this whole thing that has been going on for over 7 months, is VERY inspiring to me and very humbling.

Sherrie has been my rock and has to put up with me daily…yes, she is up for Sainthood! Haha

My family has been wonderful though this process and have always been there for me every step of the way.

For all of you following and supporting me, it amazes me every day. When this is all under control, I hope I can carry on this type of prayer support for others in need, half as well as you have done for me.

I will beat this and you are all a significant reason why.

Love and deepest gratitude,

Joe

Surgery is Scheduled

UMC called today and scheduled Joe's surgery for July 16th.  We'll be leaving early that day and checking him in first thing in the morning.  The surgery will probably last 4-5 hours.  They reminded us of the seriousness of the surgery.  It will be similar to his last surgery, except they are putting Joe's small intestine  back together and back behind the abdominal wall.  It can't come soon enough.  Joe continues to lose weight, fights it constantly, is on so many medications and just can't win the battle.  He'll be in pain and discomfort for awhile, but we're just looking ahead.  Eventually the whole bowel system should be able to absorb the nutrients, Joe should gain weight and get stronger, he'll be back on chemo and he'll be able to keep the cancer at bay.  That's the plan, so any prayers along those lines would be deeply appreciated.  You are all the best!  We love you!  Sherrie & Joe 

Dr. Ong Visit June 26th

We met with Dr. Ong today and he was somewhat surprised that Joe was still losing weight.  He said it rarely happens, but he has seen it before.  He does think reversing the ileostomy will help.  Joe had lost 42 lbs and was continuing to lose.  It wasn't for lack of effort either.  Joe has been tracking everything in and everything out.  We went through my Weight Watchers Dining Out Guide and found the most fattening things we could and set out to get them for Joe.  The rest of us are eating lettuce and carrots!  The surgery will be scheduled the 3rd or 4th week of July.  They are contacting UMC and will let us know in the next few days.  Dr. Ong explained that this is another major surgery.  He repeated that statement 3 times.  He will have to open Joe up about 1/2 of where he opened him the last 2 times.  He has to stitch the 2 ends of the bowel back together and put everything back from there.  There is also the risk of a bowel or gas busting the stitch apart before it heals, which will cause Joe to go septic again.  For that reason, Joe will have to stay in the hospital for 1-2 weeks until Dr. Ong is sure he is out of the danger zone.  He told us it will take 3-4 weeks before Joe is doing much better and around 6 months to recover.  He doesn't know when Dr.S will start chemo.  It will really be up to Joe's body and how fast he can recover and how fast he can put some weight on.  So from here, everything is up in the air.  We just pray for a successful surgery and no bowel movements or gas.  How's that for an unusual prayer!  We are really challenging our prayer team now.   We did have a great week celebrating our 31st wedding anniversary, visiting with friends, going to a Diamondback game and celebrating our grandson's 3rd birthday.  Although Joe is fatigued, I am continuously amazed that he gets out there and tries.  He doesn't always make it through the events, but he always gives it a go, sleeps, eats and gets back up and goes at it again.  I really have faith that after this successful surgery and his weight starts coming back, he'll feel like a new person.  Right now he rests about 80% of a day, so we will use that as our baseline and head up from there.  Thanks as always for the continuous prayers, cards, and support.  Love to all,  Sherrie & Joe

Happy Father's Day!

We had a wonderful Father's Day surrounded by family. Although Joe is extremely fatigued, he just loves hanging out at home just watching the chaos with family (especially little Edison). Edison just keeps everyone in stitches. It was also Candace's 28th birthday, so we were able to celebrate her birthday too. Unfortunately, Joe's weight is taking a downturn. He lost another 3 pounds for a total of 40 pounds since his surgery. His bowels are just not working yet and the food and fluids pass right through. He is still fighting it and eats and drinks as much as he possible can endure. He will be going into the local doctor office tomorrow for IV's. He's just lost too much and they said he can't risk losing any more. We will also be meeting Dr. Ong in Tucson on June 26th to discuss Joe's next surgery. Thanks for all the cards and Father's Day wishes for Joe. Just put lots of smiles on his face! XOXO Sherrie

Good Dr. Day

Joe weighed in and has still not gained a pound. After that we met with Dr. Shivalband (Dr. S). He was up to speed on all that Joe had been through and was just amazed how well Joe is doing after all he has been through and after all the weight loss. The first thing he said was Joe does not need chemo for awhile. He stated that the hot chemo is extremely powerful and did a great job. Although there is definitely disease left, there is no panic to start chemo. He wants Joe's ileostomy reversed and weight back on Joe before he would even think of doing chemo. He said if he started chemo now, it would do way more damage to Joe than any good. He also said he will worry about the chemo treatment after Joe is much stronger, he has his reversal surgery and has put weight back on. This was music to our ears! Joe could not be happier. He's going to contact Dr. Ong and schedule the ileostomy reversal sometime in July. After Joe heals for several weeks, he'll talk about treatment. In the meantime, Joe will be monitored weekly and will be getting IV fluids occasionally due to his dehydration from the bowel setback. Dr. S was so upbeat and pleased with the surgery (despite the temporary setbacks). Joe and I left there just saying "finally, a good Dr. appointment and good news. Our exact quote was "those prayers are definitely working. We couldn't do it without our support group." THANK YOU, THANK YOU, THANK YOU!! Love to all, Sherrie & Joe

Not Many Changes

Just a quick update to let you know that Joe is doing OK. He hasn't lost any more weight, but unfortunately, has not gained any either. The bowels are still not absorbing much. Just to give you an example, Joe ate a scrambled egg and within a few minutes, the scrambled egg was sitting in his ileostomy bag. It just sailed right through. This happens a lot throughout the day. Joe's main job now is to eat, drink, take meds and record everything - in and out. He is extremely fatigued, but I think there are small signs of improvement. Like today, he made it through church and was able to sit and stand like everyone else. Last time he had to sit more and we had to leave early. He also made it for a short trip to the grocery store. It's the little signs of improvement that we have to stay focused on and he has to keep eating and drinking to stay hydrated and nourished the best he can. We see the oncologist (Dr. Shivalband) on Wednesday. We have no idea what that appointment will bring for Joe, but all we know is he can't handle the chemo treatment he was on before the surgery. Hopefully, we'll get better news and a plan that Joe can tolerate. I'll update the blog after our visit with Dr. S on Wednesday. Love to all, Sherrie

Dr. Ong Visit

Joe and I met with Dr. Ong and 4 other doctors today. It was a long discussion, so I'll try and just summarize. Basically Joe has been through so much (3 major surgeries, plus hot chemo) in less than 5 months. Every time he had a surgery, his bowels shut down. It is going to take 3-4 months to get them fully functioning again. Until then, Joe will struggle with fatigue, weight loss and hydration. He is right on the border, so he has to eat and drink more and will be constantly monitored. If it gets worse, he'll have to go back on IV's. The next part of the conversation was centered around the cancer that is still in Joe's abdomen. Dr. Ong wants him to start chemo as soon as he can, to prevent it from spreading. We have to set up an appointment with the oncologist immediately to discuss what type of chemo and when Joe will start the treatments. Joe and I were stunned. He's so weak and can't imagine how he could possibly handle chemo on top of everything else he is dealing with. The next part of the conversation was around his ileostomy and further surgeries. If all goes well, Joe will get an ileostomy reversal. Unfortunately, it's another major surgery that will require a week in the hospital, tubes everywhere, no food etc... Dr. Ong also stated that Joe could have Hot Chemo 2-3 more times, depending on how he's doing, his strength, his response to intravenous chemo. He may have more surgeries to remove more tumors down the road as well. Everything will just depend on how he recovers and how he reacts to the chemo treatments. Keep those prayers coming. Pray for mental strength, as well as physical strength. Today was a tough mental day, but Joe and I will put it behind us and move forward to continue the fight against this nasty disease. Thanks for all the prayers and never ending support. XOXO Sherrie & Joe