May fun - Hawaii!!

We just returned from our trip to Hawaii.  Joe got to wear the shirt that KEZ gave him for his birthday.  We had a wonderful time thanks to Terry, Scott, Ili and Alanna Snedigar.  They let us use their condo and set up a scavenger hunt for us.  It was a blast, challenging and had a great prize at the end!  The view was amazing and although Joe had several days where he was confined to the condo, he had absolutely no complaints.  He could see the ocean from the toilet :), he could fall asleep listening to the ocean and felt the cool breeze from the ocean.  It sounds like a novel, but it truly was just perfect.  When he felt good, we would all go sightseeing or watch the girls with their events. They went ziplining (I went too), they kayaked and took surf lessons.  The girls and I went hiking and we all went sightseeing in the car.  Joe and I went to a sugar museum and we all went out for couple nice dinners.  It was the perfect medicine for the family.  The trip home was a little scary.  Joe had a really difficult time and was very sick by the time we got home.  We took him to the cancer center where they had to give him IV meds and fluids for 6 hours.  They said if it didn't work, they were going to have to admit him to the hospital.  Luckily it helped a lot.  He is going in for several more treatments until he is back to his 100%.  Joe said no more plane trips.  It's just so hard on him so we cancelled a couple upcoming trips this year. 



View from the condo




Girls off to Kayak

 



Paradise





Already pros!


On the medical side, Joe's tests have not been approved yet.  No telling when that will happen.  The new medicine Joe has tried did not work.  There is no change in his bowels.  He still has frequent (daily) cramping and fatigue.  He gets frustrated sometimes when he can't do things that used to be so easy for him.  He is learning though and trying to learn patience as well.  His body shuts him down when he tries to do too much.  It's a learning experience...physically and mentally.  Overall though I am so proud of him and his attitude.  He still amazes me with his faith, strength and attitude.  He's one of a kind.

More blogs to follow.  Our June fun is taking our grandkids to Disneyland.  Edison finally made the height restriction for the Cars ride and one of Joe's goals is to take him there.  Stay tuned for highlights from that trip. 

Thanks as always for all the love, support and prayers.  As you can see, they are working!

XOXO
Sherrie