Almost New Years

We had a wonderful Christmas, although not perfect.  Joe was extremely sick on Christmas Eve and spent the entire day and night in bed.  We were so worried about Christmas Day, but he woke up feeling pretty good.  He was able to join in the festivities and we spent hours opening gifts, laughing and crying.  He surprised each of us with a monogrammed box.  All us girls had a beautiful cross necklace and Doug's contained Joe's St. Josephs necklace and his rookie Kurt Warner card.  We were all moved to tears.  Joe got several things, but liked his new tree the best.  We planted it right outside his office window so he can watch it grow.  Joe also did his usual and sat with us at the dinner table while we all ate. He drank his juice and said he just enjoys being with the family.  We had a wonderful turnout except my Mom and Dad were unable to attend.  My Mom had another emergency surgery (colon blockage issues) and was in the hospital.  We missed them so much, but the girls and I were able to go to Prescott the day after Christmas and celebrate with them.  Joe was too sick to go, but had a nice relaxing day at home.

Dr. S is still looking for a surgeon.  So far, no luck, but none of us are giving up.  We have several names from different hospitals that are being explored.  All the surgeons that have said no, have just said it's too risky and they fear that his colon has other areas that will block as soon as this blockage is resolved.  We don't feel that way and are going to keep searching until we find the perfect surgeon.  We would deeply appreciate your prayers that we find that person quickly.  In the meantime, our routine is 18 hours a day on some kind of IV, lots of meds trying to deal with the side effects, daily vomiting, no eating, lots of praying and enjoying each other's company.  We also watch TV and get out of the house when Joe has those good moments. 

I will update the blog as soon as we get word on the surgeon.  In the meantime, it it's not before New Years, we would just like to thank you all for your prayers, support and friendship this year.  We would have never accomplished all that we did, without you.  We wish you a Wonderful New Year filled with Family, friends, fun and good health.

XOXO
Sherrie

Merry Christmas!

We just want to wish each of you a Very Merry Christmas.  We have the house decorated, the lights up, presents under the tree and the Christmas music playing.  It feels like Christmas and we are savoring every minute.  We want this Christmas to be as close to the past as possible so we are doing everything possible to do just that.  The house will be filled with family on Christmas Day and Joe fully intends on sitting at the table with us, even though he can't eat.  He is truly amazing.

On the health note, Joe had the MRI and we got the results back.  On a good note, he reacted positively to the chemo treatments in some areas.  Dr. S. said there was reduction in cancer around his stomach and liver.  The bad news is the cancer around his colon has increased.  The only way to treat that area (the same area causing the blockage) is surgery.  He met with Dr. Ong and Dr. Ong refused to do the surgery.  He said it was too risky.  Dr. S is looking for another surgeon for Joe.  When he finds one the plan is to remove that section of the colon, give Joe a permanent ostomy bag, give Joe the ability to eat again, keep him on supplemental TPN, build up his weight and strength and try stronger chemos.  We refuse to think of any other options at this time.  So to our wonderful support team, we desperately need prayers to find a surgeon willing to take Joe's case.  He continues to vomit daily due to the blockage and it is making him weaker.  We need the surgery ASAP before he becomes too weak to withstand it.  So that is our Christmas wish and we thank you for sending prayers.

God Bless You All.

Joe, Sherrie, Amanda, Shelli, Candace, Doug, Edison and Quinn

2 Year Anniversary

It's been 2 years since the day Joe went into the hospital for what we thought, was a routine appendectomy.  We knew as soon as the doctor said the dreaded "C" word that our lives would never be the same.  Unfortunately, we were correct.  The last 2 years have definitely been a challenge, but a lot of good has come from it too.  Most of which is attributable to our support team.  We continue to fight the battle, alongside you guys and will continue until the Good Lord decides its time to follow a different path. 

Joe has been extremely sick recently.  Dr. S. wanted him admitted in the hospital, but Joe just could not do it.  He chose to battle it out at home instead.  With Dr. S and all the staff at Ironwood, we have been able to get Joe some relief from the constant vomiting.  His potassium level is still very low (difficult to get back up due to the vomiting), his weight has dropped, his electrolytes and other measures have all dropped.  So the focus now is controlling the vomiting and keeping him hydrated and medicated.  He has been receiving long infusions on a daily basis and additional medications as well.  They seem to be helping as we have seen a reduction in his vomiting.  We still don't have a date for the MRI.  We believe its the normal battle with the insurance,  but Dr. S said he will get it scheduled...not to worry.  Once we get the results of the test, we will know if the chemo worked at all and what our next steps will be.

On the bright side, CBS Channel 5 aired the segment they did on Joe and Amanda.  You can view it on line at the following link:

http://www.kpho.com/story/24137632/arizona-woman-writes-book-with-her-father-about-their-familys-battle-with-cancer

We are very proud of Joe and all the girls and hopefully our journey can help others.

God Bless you all and thank you for helping us get to the 2 year anniversary.

XOXO
Sherrie

So Much To Be Thankful For

Happy Thanksgiving Everyone and we hope and pray you all had a wonderful day filled with family, food and fun.  We were blessed on Thanksgiving Day that Joe was able to spend the day with us.  Although he could not eat, he was determined to go to Prescott and spend the day with my family.  It is about a 2 hour drive north of Phoenix.  We got there and Joe immediately began vomiting.  He took care of business and then spent the rest of the day relaxing, laughing with the grand kids and just visiting.  My Mom fixed a fabulous meal for everyone and Joe chose to sit at the table, even though he couldn't eat.  I am constantly amazed by this man.  Being with family was so much more important than avoiding his favorite meal.  It touched each of us in a way I can't describe.  After we stayed awhile, we were able to stop by my niece's house on the way home just to say Happy Thanksgiving.  Joe again got sick, visited with everyone and then we all came home.  We all felt so blessed that he put himself through this just to be with us.  We are all thankful to have Joe in our lives.

On another thankful note, CBS, Channel 5 called and wanted to do a follow up to the Daddy-Daughter Dance and talk to Amanda and Joe about the book.  They came to the house on Wednesday and filmed a segment that will air on December 4th at 6:30 pm, Channel 5.  Catherine Anaya (the anchor) came to the house and conducted the interview.  Set your DVR's!  We are very excited and appreciative to Catherine and Channel 5 for taking such an interest in our journey.

Amanda's book is published and you can view everything about her venture on her blog at:

http://pullingthecancercard.com

Again, in this season of Thankfulness, the Kahler's are so thankful for all of you for supporting us and praying for us during this journey.

Happy Thanksgiving,
The Kahler's

Tough Week ---- Again

Sorry to report, but Joe has had a very difficult week.  His vomiting and nausea are out of control.  He stopped eating/drinking his clears, stopped taking walks and basically was confined to the couch, bed and bathroom.  It was a mental drain on him (and me) as well.  His biggest fear is ending back up in the hospital, so we "toughed it out" this weekend.  We called first thing Monday morning and got him in to the doctor's office.  Dr. S took control and started him on a new regiment of fluids filled with all the goodies his body is lacking. The special fluids take 3-4 hours and Joe will have it daily for awhile.  He already had signs of improvement after the first treatment.  Joe, being Joe, also did not refuse his chemo treatment today.  He had that, along with his new fluids and we are watching his every move very close.  Dr. S does feel like it is a result of the chemo and not the cancer that is causing all of this.  We all feel like it is worth it, because we are hopeful it is working.  We should know sometime in December if that is the case. 

While Joe and I were feeling down, we had a package delivered to our house from Afghanistan.  It was from our friend Doug Cave who is currently working there.  We opened the box and it was an American Flag that they flew over his base and a Challenge Coin from his unit, the Security Forces Assistance Team.  The inscription that came with the package read "Know ye that this flag was flown in the face of the enemy, on the frontier of the free world...a beacon of American resolve following the attacks of September 11, 2001, bearing witness to the destruction of terrorist forces threatening the freedom of the United States of America and the World.  Operation Enduring Freedom Presented by Doug Cave Especially for the Kahler Family."  We were moved to tears. It came at such an important time, when we were feeling down because of Joe's issues and because our nephew Mark,  left this week to join the Navy for Officer Candidate School (although we are so proud of him!).  We were so touched by this amazing gift and reminded to please pray for all those fighting for our freedom.  XOXO Sherrie & Joe

 

Our Flag - Doug is 2nd from left back row (smiling)

Daddy Daughter Thank You

I just wanted to update everyone on what has happened since the Daddy Daughter Dance.  We were able to donate over $15,400 to 5 families and the PMP Cure organization.  I wish you could have seen and heard the wonderful, heartfelt thank yous from the recipients.  It was unbelievable.  Tears of joy and gratitude.  Comments from "I just can't thank you enough", "You have no idea what this means to me", "I can't express my thanks enough", "We received your card and were in absolute shock! We got chills throughout our body as we saw your beautiful card and amazing, generous gift." "Words cannot express how thankful we are that your family thought of our family during these trying times.  You have touched our hearts and we are forever grateful."  So with that, the Kahler's thank each and every one of you for your generous gifts, prayers and support.  What a gift you have given to so many people.

Next, I wanted to share with you a link that our Daughter, Amanda has put together.  She recently published a book about our experiences (with all of us as co-authors) to help others cope with the world of cancer.  Her blog contains all the information about the book and also contains links to a couple videos from the event, pictures, the CBS news story and more.  Click on her link and scroll to the bottom for links to everything, including how to get the book if interested.  We are extremely proud of her for pulling this all together. 

http://pullingthecancercard.com/

Lastly, I just wanted to give you a quick update on Joe.  He had his 4th treatment today.  It has been difficult for him.  The rash is spreading to his back and throat, he is extremely fatigued, he has constant stomach cramps, he vomits throughout the week, he still can't eat and yet he stays upbeat.  I am more and more amazed with each passing day.  We just treasure those moments when we can walk down to the mailbox or go to the grocery store to pick out soups, juices and Popsicles.  We are hoping to make it to my parent's home for Thanksgiving (even though Joe can't eat).  We will make him turkey flavored soup and put extra whip cream on his jello! 

Thank you all for everything you did to support the Daddy Daughter Dance, for giving us the opportunity to share your generous donations with families in need, for your constant support and prayers.

Forever Grateful,
The Kahler's

Back to the Hospital

We had another rough weekend.  Joe started getting sick Friday evening and started vomiting around 3:00 am.  It would not stop and the bag was completely dry.  We knew something was terribly wrong.  We called the doctor and he sent us straight to the ER.  They immediately began "irrigating" the tube and his bag filled up twice within minutes.  The good news is Joe stopped vomiting (although I have no idea how there was anything left in his system at all).  After that, they wanted to do a CT scan and had him start drinking the contrast.  We warned them it wasn't a good idea and within minutes, Joe was vomiting again.  They decided to inject the contrast straight into his stomach.  He had the test and they told us he had a complete blockage and with that, he was admitted.  The hospital doctors were worried the cancer had taken over.  We weren't convinced since his bowels stopped working when he started chemo.  After a lot of persuading and promising to irrigate the tube, take Joe to tests and doctors, they reluctantly released Joe to go home.  We fulfilled our obligations and today found out that the bowel has a small opening.  That is HUGE.  It means Dr.S was probably correct and it was the reaction to the chemo and not the cancer spreading and shutting his system down.  It is a very small, but crucial victory.  It also allowed Joe to continue chemo treatments.  He had his 3rd treatment today and the bag is working.  We will continue irrigating the bag and make sure everything flows accordingly.  The only other issue Joe is having right now is a terrible rash (the side effect from the chemo).  More medications and lotions on the way. 

Dr. S wants Joe to have an MRI in December (after 6 chemo treatments).  He should be able to tell if the cancer is spreading, reducing or stable.  Prayers needed!

Thanks everyone for your never-ending support.  We hit a new low this weekend and by the Grace of God and all of you, we bounced back...again.

XOXO
Sherrie
 

So Many Ups and Downs

We've been on a roller coaster since the last blog.  We were thrilled that Joe beat the infection and then things weren't going so well.  We headed out to church on Saturday and Joe got sick during the service.  Typical Joe, "No big deal, I'll make it through" and then his drainage bag broke.  We had to run out of there.  We never made it to the movie because he was sick all weekend.  Then, he was scheduled to get his port put in and we spent 10 hours in the hospital.  It didn't work.  There was some kind of blockage that was preventing it from getting where it needed to end up.  They wanted to admit Joe, but he refused.  He had been through enough and wanted to be home.  We came home, kept him on constant hydration and took him back on Tuesday.  This time, they gave him fluids before the surgery and used a radiologist machine.  It worked!  We were excited, once again.  We couldn't use it for a week, but at least hope was on the way.  During all of this, Joe started his biological chemo treatment.  It made him extremely tired and he was a little nauseous, but not bad.  He got a slight rash, but this was to be expected.  All-in-all, a good treatment.  Then we went to the movie (it was so much fun), came home and slept and then stopped by Anna's and TJ's wedding reception (it was wonderful!). During all this time, Joe's bowels had stopped working....nothing.  We were so worried they were completely blocked.  And then he started vomiting Saturday night.  Again, he would not go to the hospital and so we worked through it the entire night and it stopped.  Everything he eats (although it's just clears), comes out the bag. Thank God we have the bag or Joe would be living in the hospital.  The bag prevents everything from backing up and minimizes the vomiting.  Then the AZ Cardinals won and things were just getting better.  We saw Dr. S today and were scared to find out what was happening. He told us that he was not overly concerned about it at this time.  He explained that anytime you introduce a new drug into a body, it is common for the bowel system to take a break and do nothing.  Since it started when Joe began the new treatment, he feels confident it's the drugs and not the cancer.  He also told us that Joe's cancer count is stable, which is a good sign too. We are praying he is correct and they start working again soon.  The bad news is Dr. F and Dr. Ong both agreed that Joe is not a candidate for an ostomy.  They explained that it is just too dangerous and could really set Joe back and cause issues worse than he is already dealing with.  Joe will just have to stay on clears until this biological chemo kicks it's butt!  In the meantime, he had his second treatment today and is home sleeping comfortably.  TPN is on the menu tonight with a side of clear soup and jello. 

XOXO
Sherrie

Joe Beat The Infection!!

We are so happy to report that things are turning around.  Joe's infection is gone.  He is doing so much better.  The prayers really worked this time!  Today is his last day of antibiotics and he will be free of the 2nd IV machine for about 4 hours a day.  Dr. S was so impressed with Joe. He kept saying over and over how strong Joe is based on everything he's been through.  Joe put 2 lbs back on (from the 9 he lost during this infection) and wants to put on more.  He's starving.  Dr. S put together the plan for us and is wasting no time.  Tomorrow morning at 6:30 am, Joe will go back to Chandler Regional and have the new port put in on the left side.  Monday afternoon Joe will start the biological chemo treatments at the cancer center.  These treatments are targeting the cancer on his bowels/colon.  The hope is it can kill the cancer that is squeezing his bowels (from the outside) and causing so much of the obstruction.  If he could get some relief, he may be able to eat something besides jello, popsicles, juice and broth.  If that goes well, Dr. S has found another treatment plan that will attack the tumors throughout his abdomen.  He said he can't administer it until Joe gets through this first phase of the treatment, so prayers needed that will work.  In the meantime, the new surgeon from Chandler Regional (Dr. F) is looking for ways to try and get Joe some ability to eat.  The TPN is just not enough to sustain Joe's appetite.  It's so wonderful that he has an appetite (so many cancer patients lose their appetite), but so frustrating that he can only handle clears.  Dr. F is exploring different G/J Tube options or possibly an ostomy (that's a long shot) so Joe can graduate to at least full liquids (cream soups, puddings, milk shakes...).  In the meantime, we are setting goals.  Joe hit the first one by beating the infection.  The next one is to get out of the house and go to church and then go to a movie sometime this weekend.  We just want to get out and feel normal.  Thanks to everyone for all the emails, text messages and phone calls.  Sorry I haven't been able to return all the messages.  Just know how much we appreciate them.

XOXO
Sherrie
   

Tough Times at Home

We got Joe home this weekend, but things have not been going well.  30 minutes after he was home, they delivered 4 huge boxes of supplies including a 2nd IV machine.  I knew I was in trouble.  Sure enough within the hour I was in training with 2 different nurses.  I spent several hours all weekend in training.  Unfortunately, Joe is having significant issues with this infection which requires so much attention.  He is on 2, IV machines, 16 hours a day. He gets 20+ flushes and meds per day, lots of prescriptions, fluids, TPN and both wounds are cleaned each day.  I wrap him in Press and Seal so he can take a partial shower.  It's amazing how much better that makes him feel.  Unfortunately, Joe is still having a lot of pain, vomiting, migraines, bloody noses, G-tube bags breaking and on and on.  They are possibly going to re-admit him to the hospital if we can’t get some of these side effects under control.  The nurse was here for 2 1/2 hours tonight and said we may need to take him there soon.  We are trying everything to avoid it, but we may not have a choice. We just want to get this infection cleared so he can get a port put in and get back to our old normal.  From there he can start the biological treatments.  We are losing time with this nasty infection.  We thank you for your continued support and ask that you keep praying.  This guy needs a break! 

XOXO

Sherrie

Getting Better

Joe is still in the hospital, but getting better each day.  They found another infection from the culture after they removed the port.  They said it was one of the worst "bugs" there is and could be "deadly".  We are so fortunate that Dr. S is on his game.  He wasted no time getting Joe to the hospital, getting him started on antibiotics and getting the port out.  It saved his life.  They started Joe on a 2nd antibiotic which is working great against this nasty bug.  Joe is improving a little each day.  The new plan is to get him home with daily home health care (2 nurses per day).  One will administer the antibiotics (different than normal) and the other for wound care (the hole in his chest has to heal inside out because of the infection).  He has two temporary lines in the inside of his upper arm for TPN and drugs.  They will be watching that very close as well.  I will continue administering TPN and other nursing necessities.  I'll just be so glad to get him back to our last, new normal.  When things like this happen, you appreciate the level you were previously at, because as we are learning, it can always get worse.  If everything goes to plan (knock on wood), he will be back in the hospital to have a new port put in on his left side within the month.

Dr. S has been doing so much research on Joe's disease and working with other Dr's throughout the country on Joe's behalf.  He was so excited to tell us about different things Joe can try to fight this awful disease.  Once we get this infection taken care of, Joe will continue the fight with a biological drug.  More to follow on that subject, but we literally broke down in tears when we saw the excitement in Dr. S's eyes.  It's a long shot, but it's a shot and in typical Joe fashion, he's ready to continue the fight.  He's amazing. 

As always, it's our support team that keeps us going so thank you all so very much.  We love you all more than we can even express.

XOXO
The Kahlers

Surgery Went Well

Just a quick update to let you know that Joe had the port removed today.  It was the size of a golf ball, purple and oozing unpleasantries.  The surgeon said it also had a hole in it from being used so often.  They removed it and cleaned the area well.  They can't put a new port in until they are sure the infection is cleared.  They tried putting in several temporary lines, but they collapsed throughout the day.  Joe has been poked more today than he has since this whole thing started.  He has a high tolerance for pain, but today really pushed him to his limit.  They finally used an ultrasound machine and got a temporary line in so he can get fluids and antibiotics.  They are going to try and put another line in tomorrow for TPN.  They will have to wait a few weeks before they can put a port back in on the other side.  We're hoping to have Joe home within the next couple of days.  Until then, we're back on the 4th floor where they treat Joe like a VIP.  They went out and got him red popsicles when they heard he was coming back.  It's the little things...

XOXO
Sherrie

Joe is Back In The Hospital

I mentioned in the last post that Joe had a port infection.  In typical Joe fashion, he kept the pain from everyone until it got too bad to hide.  He has been running a fever, having chills and not able to sleep.  The doctor took one look at him and said we have trouble.  He sent us straight from his office to the hospital.  They immediately started IV antibiotics.  They have to remove his port (hopefully tomorrow), let the infections heal and put a new port in on the other side.  He has to have a port for his TPN and they can't put another one in until they are sure the infection is clear.  Since Joe can't eat and he can't have TPN through a regular IV line, he has to stay in the hospital because other issues could arise.  In addition, his tests came back with issues and they want to make sure it's related to the infection and not something else. 

We were reflecting on the Daddy-Daughter Dance all week (and especially today) as we realized that our original date was 9/28.  Joe told us he wanted to have it on 9/21 and although that was much more challenging to pull it in a week, we accommodated Joe.  How did he know he would not have made it on 9/28??  We have an idea....

I again want to thank everyone for that most memorable event.  We have just been basking in the memories.  We keep looking at the pictures, reading the banner that was signed by everyone (we hung it in our house), reading emails and cards from everyone and just re-living the day over and over.  Thank you CBS Channel 5, St. Hill Bridal (Dyane, Melynda, Marilyn and family), Kachina Heat, Unique Images, Envision Entertainment (James Craig), MVP Tropies (Ray Rawlins), Pesto's (Frank and Debbie), Valle Luna (Diana and Joe), Texas Roadhouse (Tom and Carol Lawless), Barb's Bridal, MNM Production, Bob Rink Photography, Friendship Village, St. Andrew the Apostle Church and Seton Catholic High School.  We also want to make sure everyone truly knows how deeply appreciative we were for making that day so special for us.  Stay tuned for further news on where the donations went.  We are still collecting from the silent auction and as soon as Joe is released from the hospital and we have collected the rest of the money from the auction, we will be "Paying It Forward" on behalf of our incredible support team.  

Please keep those prayers coming and thanks for all you do for us.

XOXO
Sherrie


 

The Most Amazing Day of our Lives

I don't know how to describe the Daddy-Daughter Dance and what happened, except to say it was truly the most amazing day of our lives.  We had over 300 people, food for 500, a wonderful DJ, Photographer, Videographer, Screen Printer, slide show creator, Volunteers, decorators, and Rock Star Wedding Planners.  Most important we had Joe.  Joe was on an adrenaline high. He was so worried about making it to the event and making it through the event, but he did.  He wanted everyone to know that his hugs weren't as good as he had hoped.  He has a terrible infection in his port on his chest and it was tough to give those strong hugs like he normally likes to do.  As soon as his infection clears, he will be giving those wonderful strong hugs we all love and expect from him :)

The day went like this:  We watched the slide show our dear friend Susan made for us (tears), we ate, visited and Sherrie, Amanda and Joe spoke (tears); Joe, Amanda and Shelli walked down the aisle together (tears) and each of the girls had their Daddy-Daughter Dance with Joe (tears).  Shelli and Joe danced to "What a Wonderful World" by Louis Armstrong (tears); Amanda and Joe danced to "Take Good Care of My Baby" by Bobby Vee (tears) and Quinn (our granddaughter) and Candace did a short dance to "Butterfly Kisses". (tears)  Then the whole family danced to Buttercup (laughs).  After the dances (and tears), we did the Charity Dollar Dance (laughs), the Silent Auction and the Raffle (fun) and a toast of non-alcoholic Jello shots (because Joe can only eat Jello) to Joe.  The best part is we raised over $15,000!!!! (Joy)  We just can't believe it.  We are so grateful to all of you that donated, attended the event and even those who just prayed for us.  The response, the love, the support are truly overwhelming.  Joe said it right when he said in his speech "Some people think I got a bad break.  But just look around. I am truly the luckiest man on the face of this earth". 

In addition to all of this, Amanda surprised us with her book that she had been working on prior to the event.  It's called "Pulling the Cancer Card...Playing the Hand You're Given".  We were so proud of her.  You can check it out on Amazon.com.

I have so much more to say, so many more people to thank, pictures to share and video's to share.   They are all starting to come in, but I wanted to get this out now so you all know how the day went, how much money we raised and how grateful we are.  Watch for more links to photos and videos soon.

Words can't express how truly blessed we are.  We thank you all from the bottom of our hearts. 

With all our love and gratitude,
The Kahler's

Joe Speaking to Us

 

Joe and the Girls getting ready to go on stage (doing the Dad Football Dance)

 

Amanda, Joe and Shelli walking down the aisle

 

Candace, Amanda, Joe and Shelli

 

Amanda's New Book! 

 

 

 

 

Daddy-Daughter Dance Update

Just wanted to thank all of you who are gathering donations and sending donations in advance of the event.  The response has truly brought us all to tears and smiles.  I have not seen Joe this happy in so long.  He is taking good care of himself, following all the rules and doing everything possible to ensure he will be there ready to visit, to speak and to dance with his beautiful daughters.

I just wanted to update everyone on a few things:

If you are coming from out of town, we have negotiated a significantly reduced rate at a local hotel.  You may contact the Windmill Suites, 3535 W. Chandler Blvd, Chandler, AZ 85226.  1-800-547-4747, www.windmillinns.com/cha.htm.  Ask for the Kahler rate.  It is $79 per night for a suite, including breakfast.  It is walking distance to the mall and numerous bars and restaurants.  It is close to the venue as well.

Please RSVP if you are planning on attending and also let us know if you would like to order a T-shirt.  We are trying to organize food, T-shirts, seats....  In addition, we do have some food donated, but could really use more.  If you have any connections with any local restaurants, please call Amanda, Candace or Sherrie.  Our donations are coming in and we thank you so much.  There is still lots of time to ask your favorite spots if they could donate anything to our silent auction or raffle.  All the contact information is in the previous blog post. 

I've received lots of questions regarding dress code.  It is casual.  Feel free to wear shorts, golf shirts, capri's, sun dresses or whatever is comfortable. Some folks will be dressed up and some won't.  We just want you to come, be comfortable and be ready for a fun afternoon. 

Thank you again for everything support team.  We are so excited for Joe and the girls to experience their magical day, so excited for a day filled with friendship, memories, food, fun (and probably a few tears) and so excited to "Pay It Forward" to other cancer victims and to an organization dedicated to finding a cure.

With Love, Thanks and Gratitude,
Sherrie

Kahler Daddy-Daughter Dance

You are all cordially invited to the

Kahler Daddy-Daughter Dance

Saturday, September 21, 2013

11:00 am – 3:00 pm

St. Andrew the Apostle Catholic Church

3450 W. Ray Road

Chandler, AZ  85226

This event is to celebrate Joe and his family, while raising funds for cancer. The event will include lunch, entertainment, silent auction and a raffle.  Donations are gladly accepted and will all go towards those like the Kahler’s struggling with rare forms of cancer and the expense of treatments. Part of the proceeds will also go to the PMP Research Foundation (www.pmpcure.org) dedicated to funding research to find a cure for this disease.

 If you would like to donate, you can do so through Pay Pal at: https://fundrazr.com/campaigns/1ai67?psid=7f4df99be0ed412f847d4a0ce4c4592f

If you would like to donate items for the Silent Auction or Raffle, please contact Amanda Kahler at amandajokahler@gmail.com (480-204-5286) or Candace Campbell at candacecampbell@hotmail.com (480-242-1636).

We will be offering T-Shirts to celebrate this event for $15.00 each.  If you would like a T-Shirt, please include your size when you RSVP.  Sizes range from 2T-4T, Youth S, M, L and Adult S, M, L, XL, 2XL, 3Xl.

Please R.S.V.P by September 15^th to Amanda or Candace at the numbers listed above.

Amanda has also been updating the details for the event on Facebook so feel free to add her. She also set up a Facebook page under www.facebook.com/kahlercharityevent that has all the information on it!

Pay It Forward

They aired Amanda's story on TV last night and will repeat the story on the Saturday news on Channel 5.  Here is the link to view it on line. It was wonderful to watch and we are all so appreciative of Amanda's co-workers to nominate her for this award.  We will be organizing an event so we can "Pay It Forward" to others struggling with this horrible disease.  Watch for more information about that soon.

http://www.kpho.com/story/23295691/daughters-of-dad-with-cancer-wish-for-father-daughter-dance

_________________________________________________________________________________

PAY IT FORWARD

Daughters of dad with cancer wish for father-daughter dance

Posted: Aug 29, 2013 8:01 PM MST Updated: Aug 29, 2013 10:10 PM MST

By Pat McReynolds - bio | email

 

(Source: CBS 5 News)

PHOENIX (CBS5) - A Valley woman wants more than anything to have her father someday walk her down the aisle, but an aggressive form of cancer is robbing her of that dream.
"It's the absolute worst thing. My dad is my best friend. He's my absolute best friend. I don't really know how to function without him, to be honest," Amanda Kahler said.
Her father, Joseph Kahler, was diagnosed with appendix cancer two years ago and no one can say how much time he has left.
Joseph Kahler has bravely endured many experimental treatments to maximize his time with his family.
"We had to come to terms with the fact that our dad probably wouldn't be around to walk us down the aisle, so we wanted to have that dance with him so that later in our future, we could have that at our weddings," Amanda Kahler said.
They decided to host a fundraiser for cancer research that would celebrate their dad's life and include a father-daughter dance.
Amanda Kahler's friends are paying it forward to her and, with the help of CBS 5 Pay It Forward program, presented her with $500 for the event.
The $500 won't go very far in securing a venue, a D.J. and a caterer, but her friends hope others might be touched by her story and want to help also.

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On the home front, Joe is doing OK.  We have some decent days and some days we all struggle.  Yesterday was his best day in weeks.  This seems so silly, but yesterday Joe took the trash out.  He was thrilled.  And then the AZ Cardinals won their pre-season game and then we watched Amanda's story on the news.  What a wonderful day.  

Joe has not started the case-study chemo yet.  Unfortunately, it was denied by the manufacturer.  The doctor told us that he filed an appeal and sited various reasons why Joe would be the perfect candidate for this case study.  We should know by next week.  Until then, I continue improving my nursing skills as Joe and I have developed a good routine for IV feedings, G-Tube maintenance, wound care, bathing, medication dispersion and overall care.  I feel blessed that I am able to do this for Joe and thank our family and friends and my Honeywell team for all the support in allowing this to happen.  You guys are amazing and Joe and I and our family think of you and talk about all of you every single day.  It's the best medication we could ever receive.

With all our love and gratitude.

The Kahler's 

Amanda's Going to be on TV

Amanda is going to be on TV, tomorrow Thursday, Aug 29th, Channel 5 CBS affiliate, 10:00 pm.  Her co-worker wrote this which explains what it is all about.  I will post the link to the website after it airs tomorrow night, but wanted to get this out so those local can watch tomorrow night.  They truly surprised Amanda.  Stay tuned for the event now.  We want to Pay It Forward....

"Today was one of those days where it was truly hard to focus on work because of amazing things happening around me. My co-worker Jyl Acheson wrote a submission to CBS Channel 5 Pay It Forward on behalf of our other friend & co-worker Amanda. Amanda has been trying to find a donated venue to host a charity function to honor her dad who has been fighting a very rare form of cancer. Jyl's entry was selected & she was able to give Amanda $500 to get the ball rolling for her event. I am so excited for Amanda's family, so proud of Jyl's persistency & tenacity to brainstorm ways to make money for this cause, & so honored to be a part of it all, including being interviewed on camera as well. The piece is airing this Thursday at 10 pm. We all have hopes that it will garner donations & support for Amanda's family & trooper of a dad, Joe."

He's Home!!!

After 16 long days, Joe is finally home from the hospital.  The homecoming was anything but smooth.  In fact, it was a disaster.  Before I get to that, I'll update you on what has happened since the last update.  Joe did have the G-Tube stomach insertion surgery.  He could not stop vomiting and so they inserted a tube from the outside of his stomach, into the inside.  It's similar to an ostomy, but not as complicated or intrusive.  He has a tube with different caps to hook it up to a suction machine, manually pump or just have it drain into a bag with gravity.  It isn't ideal, but it does bring Joe relief.  He does not get as nauseated as he was and he has not vomited since they inserted the tube.  Joe is THRILLED with that.  The bad news is they found the cancer is spreading on the top of the intestines, which is causing some of the narrowing.  It is squeezing his intestines which is painful and problematic.  For that reason, he has to stay on TPN (IV nutrition) and clear liquids only.  He is not able to eat or drink anything besides clears.  Luckily cherry popsicles, red jello or fruit punch all fall within this category.  Joe had the hospital staff all laughing because everything Joe wanted was the 3 items above.  They would just tell the kitchen staff, don't bring anything in that room unless it is red.  One food handler brought him a whole tray of red jello and red popsicles one day.  We all laughed! 

The hospital tried everything to make his homecoming smooth, but it did not go well.  They released him around 1:30 PM, with 12 prescriptions, home health care, Pallative care, deliveries set up to the home and pages and pages of instructions.  When we got home, I called all the different companies, per my instructions, to let them know Joe was home.  The girls had all his prescriptions filled so everything was there.  We had everything perfect for Joe.  Then we found out the doctor changed his TPN recipe and we had to wait for a new delivery.  The nurse wouldn't come out until the delivery arrived.  Once it arrived, I called her.  She got called to another "quick" job and didn't end up showing up until 8:00 pm.  She arrived and said she didn't know Joe had a Power port (IV access through his chest instead of arms) and didn't know he had a G-Tube.  She couldn't handle either of those.  She called her boss, apologized and said someone else would be coming out.  Apparently no one was available, and they had to call another company.  That company could do the power port, but not the G-Tube.  That nurse arrived at 10:00 pm and did get Joe started on IV's.  He was going down hill so fast, I thought we might end up back in the hospital.  Then the suction machine delivery got all messed up and they called me at midnight saying they would deliver it between 1:00 am - 3:00 am.  I told them not to bother because there was no one here to show me how to use it.  I just handled the bag via gravity method, emptied, measured, cleaned it and took care of it the way the nurse in the hospital taught me.  So somehow between the hospital staff, doctors, insurance company, home health care companies, everything was a disaster.  Joe and I and the girls were all so physically drained, that it really started to wear on our mental exhaustion.  Lots and lots of tears yesterday, but we are re-bounding today.  Here is a picture of Joe when we first arrived home.

Joe Home At Last

Joe was up throughout the night for various issues, but this morning he did drink some juice, ate a popsicle and even read the sports page.  They are sending a new nurse out at 2:00 pm to start training me and the girls on how to set up IV's, change the TPN, take care of the G-Tube and who knows what else.

On a go-forward basis, Joe has agreed to start the Case Study Chemo treatments. The side effects should be minimal and we just pray it works.  Dr. S. said traditional chemo or any type of invasive surgery could kill Joe at this stage. I have to say that I have never in my life known anyone like Joe.  He is trying everything in his power to fight this nasty disease, despite all that he is going through.  It truly is his family and support group (all of you) that gives him the strength to fight for us all.  Please pray for healing and pray the case study works.  Thank you all so very, very much. 

Love,
Sherrie   

Day 13 in the Hospital

Joe is still in the hospital.  We had a little setback.  They were getting ready to release him and had the TPN delivered to the house with the IV hookups, had the nurses on the way to the house to meet us when we got there, had the wheelchair next to his bed to take him out and he started vomiting.....a lot.  They cancelled everything and put him back in bed.  He's been vomiting every night. They are perplexed because he is having some bowel movements, yet he is throwing up.  It may be because the blockage is too narrow to process everything and he has more (TPN, Fluids and a little food - popsicles, jello) going in his body then he can push out.  It builds up, backs up in the stomach and he vomits every night.  They just performed an endoscopy to try and reach the blockage and open it up with a balloon.  They could not reach the blockage, so it did not work.  The good news is they found NO cancer in his stomach or the part of the small intestine they could reach.  We are waiting for the doctors to review the endoscopy report and decide what do to next.  They may do more tests to try and see what is happening on the outside of his intestines or they may perform a minor surgery.  The surgery would be to insert a stomach tube to pump the excess out of his stomach (instead of using it as a feeding tube).  They said it would be capped on the outside when not in use and when his stomach starts to fill up, we would have a manual pump to attach and pump it out of his stomach.  We all have mixed feelings about that.  Joe is obviously upset about the impact to his quality of life by carrying a pump and container around everywhere, but is willing to do it if that is what it takes to relieve the nightly vomiting episodes.

On a good note, we got Shelli up to NAU so she can get settled and ready for school.  That was Joe's #1 objective and he could not emphasize it enough.  We got the message and Shelli is moved in and ready to start studying.  Joe could not be happier.

Shelli and her roommates Morgan and Caitlin on their balcony

On another good note, we celebrated Amanda's birthday today.  We had a little party in Joe's room and told stories and got to laugh a lot.  It was great.  We also took Joe outside for a walk and even though it's hot here, he just kept saying how good it felt to be outside.  Here is a picture of the birthday girl and Daddy.

Happy Birthday Amanda!

  

Still Fighting To Get Home

Joe is still in the hospital and working hard to get home.  His bowels are working ---some of the time.  They are going to start him on liquids, along with his TPN (IV Nutrition).  If it goes well, he will be closer to going home.  They said he will have to take the IV with him and he'll have home health care daily as well.  We aren't exactly sure how it all works, but I guess we'll learn as we go along.  We also learned that the surgery with the stint is not an option.  His bowels could not withstand the surgery.  Thank you again for all your support and prayers.  Joe talks about his support team every day.  XOXO The Kahlers

Still in Hospital

Joe is still in the hospital, but we did get some good news today.  The obstruction has untwisted and there is a slight opening now.  The bowels aren't working fully, but he is having some improvement.  That's a good sign that it will continue to improve.  The problem they did find is there is an obstruction in the bowel that can only be fixed with surgery.  It's a combination of scar tissue and cancer.  They are worried that the cancer could grow (like the one he just had radiated) and cause a permanent blockage.  The Dr. here wants to operate the most non-evasive way possible.  He's talking about a laparoscopic surgery to remove part of the tumor and insert a stint similar to what they do with heart issues.  He is working with Dr. Ong and Dr. S to figure out what, if anything, should be done at this time.  In the meantime, the other doctors are working on Joe's other issues - high blood pressure, bladder issues, migraines, pain control, nutrition...  They are trying to get some of the tubes out of Joe and get these issues controlled so we can get him home. We want to get Joe home as soon as possible because everyone agrees that he would feel so much better just being home.  We met with the "In Home Care" team today to talk about getting help when we do get to bring him home.  We have been receiving great care at the hospital and the nurses and doctors have been great.  We have also been receiving cards, text messages, emails, calls and visitors all in support of this latest setback.  Joe and I and the family are continuously amazed at the never-ending support from all of you.  It is so much appreciated.  I'll update again once we learn more about the next steps.

XOXO
Sherrie

It's Been a Rough Road

Joe has been having a very difficult time.  The pain has been extreme, he was vomiting non-stop and his blood pressure was extremely high.  We've had numerous doctors working with each other to try and get things under control.  They finally stopped the vomiting and have him heavily sedated to get through the pain.  It's helping things and his blood pressure is starting to decline.  They also found out his bladder infection is gone and they have found no other source of infection.  The tests indicate there has been no improvement in the obstruction yet.  They are hoping by keeping him sedated and calm, that the obstruction would start to heal.  They are starting TPN with the fluids and must keep the NG tube in until the obstruction starts improving.  They will be doing additional tests tomorrow (couldn't do them earlier because of the vomiting).  Those tests may help figure out what is happening and if there is any improvement at all.  Still praying for no surgery as it would be very dangerous with the state that Joe is currently in.  They also said he would have a permanent colostomy bag if they have to perform the surgery.  Last time Joe had the bag, he lost 40 lbs because the bowels that are left (from the cancer removal surgery) could not absorb enough nutrition to keep Joe going.  We just can't imagine going back there.  If you are praying, we do request a special prayer that surgery is not required. 

Thanks to all for you continued support.

XOXO
Sherrie

Back in the Hospital

Things continued to go down-hill for Joe and he ended back in the hospital today.  The good news is they found the problem and have been able to finally get him some relief (thanks for those prayers!)  To make a long story short, the effects from radiation wreaked havoc on his bowels.  They were in a constant spasm, which caused massive diarrhea, which lead to dehydration (hence the hospital visit on Sunday).  The CT scan on Sunday revealed a blockage from former surgery (scar tissue + cancer), but it wasn't blocking enough that things weren't still working.  Then Joe kept getting worse and worse.  Dr. S told us to get to the ER if he started vomiting.  Joe and I were up all night last night.  He was having terrible cramps and then this morning, the vomiting started.  We went straight to the ER where they discovered that his bowel had twisted since Sunday.  It caused a complete blockage, which lead to unbearable pain.  They immediately put in a tube down his nose to his stomach and started draining.  They filled up 1 1/2 containers in 5 minutes.  It was wild in there, but Joe felt instant relief.  Depending on how Joe's body reacts, will determine what is next and how long he will be in the hospital.  If all goes well, Joe's bowels will untwist (they are doing some non-surgical procedures to help that along), they start working, Joe starts drinking/eating on his own and we are home.   If they don't untwist, then they have to operate.  Dr. Ong is the only one that can operate on Joe, so we have to wait and see if/when that happens.  Prayers now needed for no surgery.  It would be such a setback for Joe.  He's been through so much, that the thought of surgery is just frightening to everyone.  Dr. S wants to start chemo on Aug 20th.  Surgery would delay those treatments as well.  Thanks to everyone for your prayers, support, emails, texts, phone messages.  Thanks to all my co-workers and boss for helping me through this as well.  As always, our support team is pulling us through.  XOXO Sherrie

Tough Weekend

Radiation is over, but the side effects continue.  Joe has been so sick.  He ended up in the hospital today due to the immense pain he’s been experiencing.  He had been up all day and night fighting the pain.  He finally woke up this morning and said it was time to go to the hospital.  Joe has such a high tolerance for pain, so when he says it’s time to go, you know things are not good.  We spent the entire day at the hospital.  They said Joe was extremely dehydrated, had a bad infection and had a bowel obstruction.  Dr. S was very helpful and guided the ER doctors to figure out what was best for Joe.  They spent the day hydrating him and getting his pain under control. They wanted to keep him for a few days, but we (and Dr. S) convinced them Joe would do much better at home since they don't need to treat his bowel obstruction yet.  We will have to take him in daily for fluids and make sure we keep him on the pain medications until the effects from radiation subside.  Your prayers and support are so appreciated.  Joe spends his spare time going through all his cards again.  It always boosts his spirits.  Thank to all from the bottom of our hearts.  XOXO Sherrie, Joe and family

Open House Cancelled

I'm very sorry to do this, but we have to cancel the Open House scheduled for Aug 4th.  We didn't realize the impact radiation would have on Joe and he is very sick right now.  The doctor said next week will be worse because his system doesn't get a chance to recover before it is zapped again.  He must get through 6 more treatments to get rid of that first tumor.  His side effects are horrible and he is confined to the house and cancer center.  He is receiving additional meds to try and help the list of side effects he is experiencing and IV's for fluid and nutrition since he hasn't been able to eat much at all.  We are just praying that after next week, he can get some relief and recover a bit before he starts on the next chemo plan.

Thank you all for your understanding.  We will reschedule once we get Joe feeling better.

XOXO
Sherrie

More Bad News

I'm sorry to report, but they found additional cancer in Joe's stomach region.  It was devastating news for us, but we met with Dr. S and he said there is a lot more fight on the way.  He confirmed the cancer is spreading throughout, and as a result, Joe will have to start a more aggressive chemo treatment.  They are nervous to start it along with radiation, so they are going to administer the lighter chemo during radiation and the more aggressive chemo after radiation.  Since he has SO MANY bowel issues, he can't tolerate the chemo he used to take.  It just shuts his body down.  So for that reason, Dr. S must try something different.  He said he's been consulting with Dr's all over the country and doing lots of research and found a new drug.  It's considered a "case study" and Joe is willing to try it unless it makes him so sick, he has no quality of life. Dr. S. said he completely understands and will only administer those chemos that Joe's body can handle. 

In the meantime, Joe will be staying very close to home and his activity has been minimized due to all the treatments and bowel effects.  He would love to get out and visit more, but his bowels don't allow it.  For that reason, we have decided to have a Housewarming/Visit the Kahlers, Open House.  It will be Sunday, August 4th, 12:00 pm - 5:00 pm.  NO GIFTS, but we will make it pot luck.  Everyone is welcome to come by, grab something to eat, get a tour of the house and visit.  We look forward to it.  No RSVP is necessary. 2114 E. Oakland Street, Chandler, AZ 85225.  If you have any questions, you can email me at sherriekahler@hotmail.com.

Keep those prayers coming.  We need them and so appreciate it. 

All our love and thanks,
Sherrie & Joe

Not Great News

We saw Dr. Ong today and got the test results.  They found a tumor in Joe's pelvic area.  It was a shock, but also not a complete surprise since we knew something wasn't right.  Joe has just not been feeling well for sometime.  Surgery is not an option for numerous reasons, but the bottom line is Dr. Ong said it would cause way more problems then help anything.  Our only option is radiation.  They usually don't administer radiation for Joe's type of cancer, but are hoping this will work with this particular tumor.  Joe starts prep tomorrow and will be having radiation everyday for 3 weeks.  They will re-evaluate after the 3 weeks and see if it works.  Our prayers are that it kills the tumor and gives Joe some relief. 

Prayers are needed more than ever right now.  We thank you from the bottom of our hearts.

Sherrie & Joe

Moving Day

Just a quick post to let you know what has been going on with the Kahler's.  Some of you may not know, but we decided to move.  We were planning on downsizing in a few years, but decided to do it sooner than later.  We bought a home closer to Candace, Doug and the kids and the same distance from Amanda.  We have been completely renovating it since February.  It was much more difficult than we ever imagined, but the end result is wonderful.  Unfortunately, it took much longer than expected and we had to move in July in Arizona.  Timing could not have been worse.  We hired movers, but even with that, it was a nightmare.  Thank goodness my wonderful family rallied and picked us up when we hit bottom on moving day.  We are slowly adjusting and are planning on taking things slow to get settled.  Our new address is:

2114 E. Oakland Street
Chandler, AZ  85225
Home Phone:  480-961-7591 (same as before)

During all of this, we went to Tucson and got Joe's MRI done.  We see Dr. Ong on Tuesday to get the results.  Joe has not been feeling good at all, so we are anxious and nervous to find out what is going on.  Hopefully we get some good news and Dr. Ong can help Joe get some much needed relief.

I will post again after the appointment with Dr. Ong and let you all know the outcome.  As always, thanks for the ongoing prayers and support.  XOXO  Sherrie

June Fun - Disneyland!

We headed off to Disneyland for our June adventure.  We drove, instead of flying, due to Joe's troubles with flying.  Unfortunately, car rides aren't much better.  Joe was extremely sick after we arrived.  We had scheduled a dinner for Joe to meet Chad (the only other person we know of with appendix cancer).  Joe wasn't able to make it, but the rest of us did get to meet Chad, his daughter Parker and his Mom, Cheri.  It was so great to meet them and share stories.  Chad is 32 years old and has similar issues to Joe.  He has an amazing attitude and we continue to keep him in our prayers.

Cheri, Chad and Sherrie

The next day, Joe was determined to ride the Cars ride with Edison, so we all headed off to California Adventure.  Our friends, Disney Dave and Lauri met us there.  Joe immediately got sick as soon as we arrived at the park.  While he was in the bathroom, the family headed to the ride to get in line and I headed to the First Aid/Chamber of Commerce area to find rest/hydration areas for Joe.  They went over and above and gave us a special pass so Joe could do some things with his Grandkids and not spend all his time waiting in line.  They said "We just want you to have a wonderful time while you are here".  It was truly Magic.  Joe rode some rides with Edison and Quinn, he rested, watched the parade and headed back to Anna's house.  Without the assistance of Disneyland, he would have never been able to do those things.  I just can't thank them enough.  We were able to do in a few hours, what would have taken us the entire day.  It was hard on Joe, but so worth it.  The smiles on everyone's faces just says it all.  Special thanks to Anna for letting us stay with her and making everything so comfortable for all of us. Special thanks to Chris Smith for giving us some passes and special thanks to Disneyland for letting all of us have this amazing time.  We made memories we will treasure forever.

The whole family with Mater

Papa and Quinn

Edison meets his hero, Lightning McQueen

The Cars Ride - A Memory we will treasure forever!

The Whole Family

They crashed after the "Best Day Ever!"

 It took us 9 1/2 hours to get home (a normal 6 hour drive) and Joe was not doing well.  We headed back to the Dr. and they immediately began the IV's.  They ran some tests and again he was very close to being hospitalized.  In addition, they had postponed chemo for a week so we could go to Disneyland, so he had to get chemo.  Altogether, through it all, he lost another 10 lbs.  We have cancelled all travel plans and are now focusing on getting weight back on Joe and keeping him hydrated.  It looks like the tests will be approved and we are now just waiting for scheduling in Tucson for all of Joe's tests to find out what the cancer is and hopefully, is not, doing.  I will post as soon as we learn more.

Joe had a relaxing Father's Day with the whole family and is so appreciative of each and every day.  Although the vacations were very difficult for him, they were memories we will always treasure.  In Joe's words "It was all worth it".  Now it's time to recover!  

XOXO

Sherrie

   

May fun - Hawaii!!

We just returned from our trip to Hawaii.  Joe got to wear the shirt that KEZ gave him for his birthday.  We had a wonderful time thanks to Terry, Scott, Ili and Alanna Snedigar.  They let us use their condo and set up a scavenger hunt for us.  It was a blast, challenging and had a great prize at the end!  The view was amazing and although Joe had several days where he was confined to the condo, he had absolutely no complaints.  He could see the ocean from the toilet :), he could fall asleep listening to the ocean and felt the cool breeze from the ocean.  It sounds like a novel, but it truly was just perfect.  When he felt good, we would all go sightseeing or watch the girls with their events. They went ziplining (I went too), they kayaked and took surf lessons.  The girls and I went hiking and we all went sightseeing in the car.  Joe and I went to a sugar museum and we all went out for couple nice dinners.  It was the perfect medicine for the family.  The trip home was a little scary.  Joe had a really difficult time and was very sick by the time we got home.  We took him to the cancer center where they had to give him IV meds and fluids for 6 hours.  They said if it didn't work, they were going to have to admit him to the hospital.  Luckily it helped a lot.  He is going in for several more treatments until he is back to his 100%.  Joe said no more plane trips.  It's just so hard on him so we cancelled a couple upcoming trips this year. 



View from the condo




Girls off to Kayak

 



Paradise





Already pros!


On the medical side, Joe's tests have not been approved yet.  No telling when that will happen.  The new medicine Joe has tried did not work.  There is no change in his bowels.  He still has frequent (daily) cramping and fatigue.  He gets frustrated sometimes when he can't do things that used to be so easy for him.  He is learning though and trying to learn patience as well.  His body shuts him down when he tries to do too much.  It's a learning experience...physically and mentally.  Overall though I am so proud of him and his attitude.  He still amazes me with his faith, strength and attitude.  He's one of a kind.

More blogs to follow.  Our June fun is taking our grandkids to Disneyland.  Edison finally made the height restriction for the Cars ride and one of Joe's goals is to take him there.  Stay tuned for highlights from that trip. 

Thanks as always for all the love, support and prayers.  As you can see, they are working!

XOXO
Sherrie