Tough Times at Home

We got Joe home this weekend, but things have not been going well.  30 minutes after he was home, they delivered 4 huge boxes of supplies including a 2nd IV machine.  I knew I was in trouble.  Sure enough within the hour I was in training with 2 different nurses.  I spent several hours all weekend in training.  Unfortunately, Joe is having significant issues with this infection which requires so much attention.  He is on 2, IV machines, 16 hours a day. He gets 20+ flushes and meds per day, lots of prescriptions, fluids, TPN and both wounds are cleaned each day.  I wrap him in Press and Seal so he can take a partial shower.  It's amazing how much better that makes him feel.  Unfortunately, Joe is still having a lot of pain, vomiting, migraines, bloody noses, G-tube bags breaking and on and on.  They are possibly going to re-admit him to the hospital if we can’t get some of these side effects under control.  The nurse was here for 2 1/2 hours tonight and said we may need to take him there soon.  We are trying everything to avoid it, but we may not have a choice. We just want to get this infection cleared so he can get a port put in and get back to our old normal.  From there he can start the biological treatments.  We are losing time with this nasty infection.  We thank you for your continued support and ask that you keep praying.  This guy needs a break! 

XOXO

Sherrie